In collaboration with Meeting You Podcast, we periodically feature a foundation making a difference in the lives of patients and communities. By showcasing their achievements and hurdles, we aim to inspire and inform other foundations working towards positive change. Together, we can learn from each other's experiences, exchange ideas, and work for the benefit of all.
Our mission is "to provide support for families caring for a child with CRELD1, to raise awareness of this very rare disease and to support medical research."
"Our mission is to find a cure for early onset OTC Deficiency and to advocate for individualized treatment options beyond standard of care. Our vision is that children with OTCD will be diagnosed immediately after birth and treated promptly in accordance to their specific variant so that they can live a healthy life, free from metabolic crises."
"The Mission of the FAM177A1 Research Fund is to improve the lives of every patient with FAM177A1 Related Disorder by uniting the global community in order to accelerate research and develop patient-focused treatments."
Click here to learn more about FAM177A1-related disorder and The FAM177A1 Research Fund.
Founder Series Interview
EP3(F): Carolina Sommer & The Born a Hero Foundation
"CS Foundation is committed to supporting the patients, families, and caregivers impacted by Chondrosarcoma, a rare and life-threatening form of bone cancer. We strive to improve public information regarding this disease as we build a robust network of resources for patients and physicians alike."
"Our mission is to raise awareness of Opsoclonus Myoclonus (Ataxia) Syndrome, maintain a support network for caregivers, and fund research for a cure."
